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COMMITTEE OF MANAGEMENT
President - Jeanne Vernon (WA)
Vice President - Gina Antich
My name is Gina Antich. I have 3 lovely kids. My eldest is Nicholas who is 8 years old. Then there's Shaun who is 5 years old and last but not least my little Tayla sho is 20 months and is MMA Responsive. Tayla is on a restricted Protein diet and has weekly B12 injections. She has responded quite well to all treatment that has been recommended by the doctors. My aim is to raise money and broaden people's awareness as there seems to be little knowledge about MMA in Perth. I have been asked to write about my hobbies, but with these three kids and looking after Tayla's condition really that is my hobby!
Dianna Mazzone - Secretary (WA)
Treasurer/Public Officer - Joan Carboon (VIC)
Joan is the Nanna of two PKU children whose contribution to the family is not only the occasional babysitting, and visiting with PKU fairy cakes, she also is the MDDA Treasurer. Where would we be without grandparents! Joan is very good with figures, (not the waistline type, as Joan also occasionally supplies a cream sponge for committee meetings!). She consistently reminds everybody about GST compliant invoices, and getting three quotes for everything! Joan has been involved as a committee member for several years.
General Committee Members include:
Bernadette Suitor (ACT)
Bernie is a PKU Adult and was the 2006-2007 MDDA President.
Mary Knezevic (SA)
I am a pku adult who has been on diet for life. I have three young children all not affected by pku. Running two businesses and managing three kids takes up most of my time, but always love to chat to others about pku. My view for the future is to help our pku communication group in SA to grow, allowing people to chat to others with the same dilemmas and feel comfortable, and at ease.
Susi Hendricks (NSW)
Ingrid Stahlhut (QLD)
I am a mother of two girls. My eldest, Madison is 10 years old and my youngest, who has PKU is Elena and she is 7. I am on the committee for our local Girl Guides unit in Highfields, I play netball and have recently started learning ballet (much to my husbands’ amusement). I also work at Westpac Bank part time. My husband, Scott and I joined the MDDA not long after Elena was diagnosed with PKU. We are totally behind the MDDA and what it stands for and I look forward to working with all the members of the MDDA.
Emmeline Crause (QLD)
My name is Emmeline Crause. I am mum to Dylan (10) and Erin (7)(PKU). We migrated to Australia from the UK having previously lived all our lives in Zimbabwe. Erin was unfortunately only diagnosed with PKU when she was 2 years old, as Zimbabwe do not do any type of newborn screening. She has had various developmental difficulties, but is now doing so well, and is attending mainstream schooling in Grade 1, which she loves! I juggle my time between work, kids, home and sports, which can be pretty demanding. I am always keen to help people achieve an better understanding of PKU and all metabolic disorders.
Robin McSwiney (VIC)
Hi, I’m Robyn McSwiney. I have 3 delightful children, Ryan 6y.o., Connor 5y.o. (PKU) and Elle 2y.o. Prior to having kids I was a veterinary nurse but have since obtained my Division 2 Nursing Certificate and now working part time in the aged care sector. My husband and I feel extremely fortunate to have 3 healthy, happy kids. Connor is doing very well, excepting and enjoying his protein restricted diet. We have had amazing support from the MDDA, Royal Children’s Hospital and other families with PKU kids. I have joined the MDDA Committee to give something back and do what I can to support and strengthen the future of the MDDA.
Rebecca Saleh (NSW)
My name is Rebecca Saleh, I am married to Mark, and we live in a country town Forbes, which is in Central Western NSW. For most of my life, about 30 years, I have ridden horses at the Agricultural shows and also at the Royals (Sydney, Canberra, Brisbane and Melbourne) and have won many ribbons and trophies. Now I am on the Forbes Show committee as a Ring Steward in Ring Events (horses). I have been on this for 5 years and enjoy it. And I am a 34 year old adult living with Classic PKU.
Maria Contera (WA)
My name is Maria Contera. I am married to David and we have two beautiful
boys Ethan and Lucas. Ethan is four years old and Lucas is two years old.
Lucas has PKU and Ethan does not. I was born and raised in Fremantle,
Western Australia and David was born in Madrid, Spain. We live in Atwell,
Western Australia. Besides being a mum, and a wife, I have a passion for
raising awareness for PKU. I developed this passion not long after Lucas
was born, because with time it became more and more obvious that very little
was, and still is, known in the community about PKU. I enjoy preparing low
protein food, it's more challenging and it allows you to bring out the
imaginative and creative side when trying something new or different.
In 2007 my main goal is to help raise PKU awareness in the community and
participate in fundraising. I look forward to my role as WA's committee
member and also to meeting members of the MDDA.
The MDDA also has National representatives of specific disorders, as well as State based link parents/affected individuals. Click here for information regarding link people representing your disorder or in your State
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