Who is the MDDA

The Metabolic  Dietary Disorders Association is a national self-help group supporting people affected by genetic (inborn) errors of metabolism.

Our aim is to offer families a comprehensive resource of information and support.  We provide members and their families forums to share experiences and information, to educate themselves and the general community about living with an inborn error metabolic dietary disorder.

The MDDA fosters co-operative relationships between members, healthcare professionals, government departments and other agencies to promote the health and wellbeing of members.

MDDA objectives are pursued by the Committee of Management

 

2009-2010 Committee of Management

 

President  

Shona Browne (VIC)

PKU Parent

sobrowne@dodo.com.au

 

Vice President  

Beth Engwirda (NSW)

UCD Parent

0418 284 016

ben42866@bigpond.net.au

 

Treasurer

 

Jeanne Vernon (WA)

PKU Adult

08 9342 2370

vernon93@bigpond.com

 

Secretary  

Vanessa Mekesic (WA)

PKU Parent

08 9390 1697

marleydog2@optusnet.com.au

 

General Committee Members

 

  QLD Ingrid Stahlhut PKU Parent ingridstahlhut@hotmail.com 0418 725 747
  QLD Emmeline Crause PKU Parent emcrause@gmail.com 07 4698 7581
  VIC Robin McSwiney PKU Parent robynmcswiney@optusnet.com.au 03 9774 3362
  SA Bev Rosdenzweig PKU Parent bev_390@bigpond.com 0400 811 203
  WA Olivia Sanginiti PKU Adult shark@iinet.net.au 08 9310 6260
WA Anna Hoar PKU Adult aporteus@gmail.com 0404 012 782

 

Executive Director/ Public Officer

 

Kerri Carboon

PO Box 33

Montrose VIC 3765

Freecall 1800 288 460

mddaaustralia@iprimus.com.au

 

The MDDA also has National representatives of specific disorders, as well as State based link parents/affected individuals. Click here for information regarding link people representing your disorder or in your State