You Know You Have a Child with an Inborn Error of Protein Metabolism When:
|Given a couple of minutes, you can name most of the amino acids in protein;
You know what an amino acid is;
You think the five food groups consist of:
1) Fruit
2) vegetables
3) rice milk
4) loprofin
5) vege chips;
You suspect that people who don't realise bread contains protein have inferior intelligence;
"No, it's not an allergy" becomes a daily mantra;
"Yes, it's sort of like diabetes" comes in at a close second;
You spend more time reading in shopping centres than shopping;
You are elated when your weekly grocery bill comes to $310;
You have a panic attack when your child says she needs to be sick;
Doctor's stare at you blankly and consider calling psychiatric services when you arrive at emergency and explain the problem;
You can pronounce isovaleric academia correctly and you're game enough to have a crack at beta-methylcrotonylglycinuria;
You don't understand why anyone wouldn't have at least 3 sets of kitchen scales;
The top of your fridge resembles a pharmacy;
Half of the papers stuck on your fridge are written in Latin;
Your 5-year-old frequently asks complete strangers - "has this got too much protein?"
Any subsequent children are removed from you at birth to have their heels stabbed every 3 hours in "special care".
You are constantly reminded how precious life is and just how damn lucky you are to be "normal".
Rachael Sharman
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